DMD Patients in Mauritius
As at the end of 2008, the Muscular Dystrophy Association, Mauritius, has identified 35 DMD patients across the country. Sadly, most patients have not received the proven treatments that are provided in advanced countries.
Since 2008, following the launch of the book: Voices of Hope - coping with muscular dystrophy in Mauritius by Philip Wan, the Association has endorsed a new vision - the management of the disease to slow down its progress, thus enhancing life span and quality of life. It was only at the beginning of 2009 when a team of doctors has been formed to address the management of Duchenne - a pioneering venture. It is intended that in due course, the management of other types of muscular dystrophy will be undertaken.
The use of ventilators has been introduced for the first time in Mauritius to Duchenne patients in mid-2008. As at end 2008, five patients are using ventilators. The team of doctors who have volunteered their time and goodwill are examining and monitoring the patients using the "Standards of care for Duchenne muscular dystrophy" promoted by TREAT-NMD, an international Neuromuscular Network. At the time of writing (March 2009), the Association is exploring possibilities of inviting experts from overseas to provide technical support and share their experiences with the team of doctors. Furthermore, the Association is seeking the collaboration of the Ministry of Health to complement the work of the doctors.
The Association is also very appreciative of the other professional support it is receiving for its members. The professionals include a psychologist and two physiotherapists - all volunteers. The services of a team of nutritionists are currently being sought.
MDA has intensified its efforts to bring a holistic approach to the management of Duchenne, to the extent possible. A list of the professional support is given on the website.
MDA also pursues a dialogue with the Ministry of Social Welfare and Ministry of Education in order to create greater awareness on muscular dystrophy and
According to the data, five boys are less than ten years old, with the youngest at eight. There are twelve boys between ten and fourteen, and thirteen are between the age of fifteen and nineteen. Six boys are between twenty and twenty-five, with the eldest, a twenty-six year old.
Thirty two boys are confined to a wheelchair. The youngest is eight years old.
Thirty-one of the boys have a motorised wheelchair, which allows them freedom of movement. The others have to rely on someone to push them. None of the non-Duchenne patients have a motorized wheelchair.
Less than half of the boys eligible for schooling are attending school.